Parents of high-risk infants experience a variety of challenges in providing care at home, in particular in communication and receiving social support for caregivers.
Large amounts of health information are often stored and recorded by individual clinicians who cannot or do not share records. Thus, parents must bear the responsibility for sharing information between clinicians. However, it can be important for the long-term health of both the infants and their families to share information with other caregivers, clinicians, and their social networks.
I wanted to understand the social, communication, and collaboration needs of parents, other caregivers, clinicians, and non-clinical professionals. In this work, it was important to consider how we might design collaborative communication technologies in a mobile application.
( PDF ) Leslie S. Liu, Sen H. Hirano, Monica Tentori, Karen G. Cheng, Sheba George, Sun Young Park, and Gillian R. Hayes. 2011. Improving Communication and Social Support for Caregivers of High-Risk Infants through Mobile Technologies. Proceedings of the 2011 ACM Conference on Computer Supported Cooperative Work (CSCW 2011).